Monday, April 14, 2008

Winter is here

It has been a rather cold day today around here. I rugged up and went for a short walk in our local park which happened to be deserted.
I spent most of my day working on and adding new works on my Redbubble photopage, I drank lots of warm tea which in effect is unusual for me as I've always been a coffee person but I find the taste of coffee rather distasteful since my Chemo.
It's really strange how it affects some of your senses, another thing that bother me at the moment are bright lights especially neons like in the supermarket meat section etc...
I can tell also that something is happening in my mouth, I've been doing mouth washes on a regular basis but I've noticed that I may already be getting some ulcers....I know I've had a bit of a rough start with my Chemo but I am also very well aware that I am only starting and that other nasty effects are likely to plague me for the next couple of weeks or so....

Apart from that I got a call from my Dad who has been doing some good work in the background and has managed to secure us an appointment with Prof X, a renowned soft tissue sarcoma Australian oncologist who oversees all clinical trials in the state and works at one of Sydney's major hospital leading oncology unit.

The appointment is tomorrow, I'm not going there with any expectations but any chance to getting a foot in the door early or at least getting a second opinion wouldn't hurt. At this stage any info from the experts is welcomed.

2 comments:

Bea said...

Now that you're hydrated and a bit stronger again, I hope the ulcers don't amount to much. I suppose time will tell.

Good luck with the appointment tomorrow. Hoping you hear something positive.

Bea

Anonymous said...

Hi Alex,

I remember those visual disturbances. After a while I started calling the bright bluish light that I saw everywhere the color of heaven.

Did I tell you about Magic Mouthwash before? I think I did, but if not let me know and I will post you the info.