While I was kind of dreading my last cycle this week, I was also looking forward to the end of it but it's not to be. Apparently my blood count is too low and the treatment needs to be deferred by one week. That means I'm going to feel like shit during our getaway weekend that we had planned as a celebration to the treatment's end. The nurse told me I had to ring the front desk and make an appt for next week, well I rang the front desk but the person couldn't give me an appt today because they are apparently short of staff next week and it needs to be approved by the head honcho first etc...so I need to ring up tomorrow in the morning....I'm not sure where I will be because well I'd planned with the HR dpt at my work to take the whole week off and I went to the doc today and got myself a medical certificate for the week, and knowing my work they'll probably refuse for me to return to work without having a certificate to say that I can, meaning I'm going to have to take another whole day off just so that I can get this certificate and I'm at the stage where I hardly have any sick leave left and can't really afford to be off for administrative purposes....apart from that my eyes are burning again...so yeah it's just f*cking great....
It really pisses me off, I had psyched myself for this week and now I've got to stress over reorganising everything.
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- Alex
- Diagnosed with Leiomyosarcoma, a rare soft tissue cancer on Friday the 28th of March 2008, this blog is about my ups and downs, some random thoughts and dealing with the many challenges ahead.
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5 comments:
Just when you thought you were going to be able to get it over with.
And the work thing sounds like a nightmare. I'll hope against hope they're a little more flexible for you... and also that you don't feel too crappy on your weekend away.
Bea
I'm so sorry - this is just a huge disappointment. I really hope the work thing gets better and that they can be a lot more understanding (and maybe use some common sense!)
Wishing for it all to go as smoothly as possible and for you to feel well enough to enjoy your weekend with V.
Alex, my friend Carole(Seattle) sent me here and I've read every post.
I suppose it's weird to say that I have enjoyed reading but what I mean is that I have really appreciated your simplicity and honesty. You have given me a clear picture of how it feels to deal with this rotten thing. I want to understand so that I can be more helpful to my family and friends.
I hope that you and Vee managed to have an enjoyable weekend. I'm happy for you that you have an angel on your side, as well as a researching Dad who is doing the best he can. Good luck to you.
Aussie, Aussie, Aussie, Oy! Oy! Oy!
Laurie from Victoria
Hi Alex,
I noticed that you have not posted an entry since we last "talked". So, I hope you will not mind if I give a little update for you.
As of September 7th, Alex's cancer continues to progress and he is under palliative care though still receiving treatments to try to keep it at bay for as long as possible so that he can enjoy some quality of life and time with his family, the pot of gold at the end of his rainbow. Of course we all still hope for the miracle of a cure to Leiomyosarcoma. The last words in his e-mail were, "dealing with cancer all day then writing about all night became a bit much.....nowadays I just try to enjoy every moment and try to live kind of a normal life."
I so agree with you, Alex, but I also do not like to see blogs that just stop. So this is for those who come along and wonder why you stopped writing. Please write me anytime or leave a comment on my blog at http://e-cj.blogspot.com/ if you like. I truly do understand where you are coming from, my friend. I keep praying for that miracle...
Carole
Just in case anyone still follows this blog and wonders, Alex passed away on May 11, 2010.
Rest In Peace my friend.
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